Cystic Fibrosis

The Minnesota Cystic Fibrosis Center is one of the world’s largest and most experienced, and our lung care is continually recognized as among the best by U.S. News & World Report.
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Cystic fibrosis (CF) is a complex, life-threatening, inherited disease that mainly affects your lungs and gastrointestinal system. If you have cystic fibrosis, you may find it difficult to breathe and you may have recurring lung infections. CF can also affect other organs, such as your pancreas, where it prevents the release of digestive enzymes that enable your body to absorb vital nutrients.

The majority of people with CF are diagnosed by newborn screening. Today, the median predicted survival age is close to 40, according to the Cystic Fibrosis Foundation.

Our Approach

M Health Fairview physicians are known throughout the world for their care of people with lung diseases, such as CF. Our adult patients are cared for at Center for Lung Science and Health within the University of Minnesota Medical Center. Children with CF are cared for in the Discovery Clinic at University of Minnesota Masonic Children’s Hospital.

Children and adults are cared for by a multidisciplinary team that provides patients with CF the highest quality of life possible. Our team includes physicians, nurse coordinators, respiratory therapists, dietitians, social workers, and genetic counselors. In addition we have many sub-specialists experienced in pediatric or adult cystic fibrosis care including otolaryngologists (ENT), gastroenterologists, hepatologists, endocrinologists, interventional radiologists, and surgeons.

This center is one of the world’s largest and most experienced, and our lung care is continually recognized as among the best by U.S. News & World Report. Many of our physicians are also researchers, seeking new therapies and trying to understand and control potential complications of CF. We support a variety of clinical trials and encourage patients to take advantage of them. With an intensive focus on preventive care, our cystic fibrosis patients enjoy a life expectancy well above the national average.


Treatments, Tests, and Procedures

Endoscopy

An endoscope is a long, thin, flexible tube with a tiny camera on the end. Endoscopes enable specialists such as gastroenterologists, colon and rectal surgeons and thoracic surgeons to see inside the body without surgery.
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Pediatric Endoscopy

An endoscope is a long, thin, flexible tube with a tiny camera on the end. Endoscopes enable specialists such as pediatric gastroenterologists to see inside your child’s gastrointestinal system without surgery.
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Lung Transplant

A diseased or failing lung can be replaced with a healthy lung in a surgical procedure known as a lung transplant. This procedure is reserved for people who have tried other medications or treatments, but their condition and quality of life hasn't sufficiently improved.
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Sweat Testing

People with cystic fibrosis (CF) have more salt (sodium and chloride) in their sweat than other people. Measuring the amount of salt in a person’s sweat is the preferred way to diagnose CF. Sweat testing is painless, fast and reliable.
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Nutrition Therapy

Cystic fibrosis (CF) can affect the pancreas which produces enzymes and fluids to help you digest food. This can cause a number of digestive problems from poor absorption of food and nutrients to gas and constipation and blockage in the digestive tract.
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Liver Transplant

When liver function deteriorates it may not adequately perform these tasks and a transplant is necessary. A liver transplant is a major surgical operation in which the diseased liver is taken out of the recipient's body and replaced with a healthy one from either a deceased or living donor.
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Pediatric Liver Transplant

A liver transplant is a lifesaving option for many young patients with liver disease. The child’s medical condition and quality of life are factors that lead to the decision to remove a diseased or damaged liver and replace it with a healthy donor liver.
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Airway Clearance Therapies

Airway clearance therapies help people manage the symptoms of cystic fibrosis and other lung conditions. Airway clearance therapies can take a variety of forms, but all are easy to perform and involve coughing or huffing ─ taking a breath and holding it, then actively exhaling.
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Infant Pulmonary Function Testing

If your child has been diagnosed with a lung condition such as cystic fibrosis (CF) and is under the age of two years, infant pulmonary function testing will be recommended. This study measures the size of your child’s lungs and determines how easily he or she is breathing.
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There may be other treatments, test, and procedures for this diagnosis, including:

  • Pulmonary (Lung) Function Test
  • Medical Management
  • Nasal Polyp Removal
  • Oxygen Therapy
  • Pancreatic Enzyme Supplements
  • Respiratory and Airway Management
  • Bronchoscopy

Call your preferred location to schedule an appointment or submit an online request.


Cystic Fibrosis Research

Our commitment to research began in 1961 and continues today with research teams dedicated to both pediatric and adult patients. Many of our physicians are seeking new therapies and trying to understand and control complications. 

We support a variety of clinical trials and encourage patients to take advantage of them.  By participating in clinical trials you offer promise and hope to future generations.